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Online Groups |
Illinois
Groups |
Wisconsin
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Miscellaneous Groups |
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Fibromyalgia is
a complex condition but can be managed
Know you are not alone
in your search and there are resources available to help
you. To date there is no one treatment that fits all. There
is research taking place to find answers, and caring
physicians and researchers working diligently for all of
us.
There are many treatment
modalities available that work to help diminish the pain and
other symptoms. Also many categories of drugs being used
for help with pain, sleep and fatigue as well as the myriad
of other symptoms experienced. What works on one may not
work on someone else. We all respond differently. Our
complex conditions take a multi-discipline approach and
often combining Traditional and Complementary/Alternative
treatments with medication can work. A few suggestions to
get you started:
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Have a discussion with
your doctor about medications such as Lyrica now officially
approved by the FDA for fibromyalgia, also Xyrem and many
others now being used for FMS to help with pain and sleep.
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Explore a few examples of
treatments that have worked for some, such as: Acupuncture,
Biofeedback, Chiropractic Care, Cognitive Therapy, Massage,
and Guided Relaxation to name a few. Research any therapies
you may be interested in. It is important to find certified
specialists who understand the complexities of fibromyalgia.
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Seek the counsel of a professional for the depression you
are feeling, someone certified in Cognitive Therapy can be
very helpful. Also let your physician know of your
depression.
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Warm water exercise is
most beneficial as well. It protects the joints, keeps the
muscles relaxed while strengthening and increasing
physical endurance, aerobic capacity and can help with our
emotional feelings of wellbeing.
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Be sure and tell you
health care provider of any over the counter
medications, vitamins or herbal supplements you may be
taking as well as any other treatments.
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The degree of pain is
different for all of us and must be tailored to our
individual needs.
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Education is key; you should learn as much as you can about
your condition so you know what kinds of things to talk to
your doctor about. Take any information you have and discuss
it with your doctor. This can be the beginning of developing
a partnership with your doctor an, ideally giving you an
opportunity to be a part of the decision making process
regarding treatment options.
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Support groups offer
unconditional support and good resources.
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SUPPORT GROUPS
FIBROMYALGIA/CHRONIC FATIGUE/LUPUS SUPPORT GROUP:
This support group meets the first Saturday of each month at 884 Main
Street (Route 83) in Antioch, IL from 10:00 a.m. to 12:00 p.m. This group is open
to all individuals who have chronic pain conditions, particularly
Fibromyalgia, Chronic Fatigue and Lupus. There is no cost to attend and
family members are welcome. Seating is limited, so reservations are
recommended. For more information or to make a reservation, please call
847-362-7807.
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AFFTER
facilitates an on-line support group that involves members
from around the world. This is a good method of
communicating with others who understand because they suffer
with the same symptoms as you do. It is a place to get
doctor referrals, discuss symptoms and treatment options, do
some venting, give or receive support, and develop
friendships with others if you want to.
Link:
http://health.groups.yahoo.com/group/affter/join
(on-line support group - interactive)
Our group is open to anyone who:
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Has been diagnosed with Fibromyalgia, with or without other
related syndromes
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Thinks they may have Fibromyalgia
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Has a loved one with Fibromyalgia
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Is a support person such as a doctor, nurse, attorney, etc.
Whenever someone sends a message or replies to a message, the
message is then sent to all members via e-mail. Unlike public newsgroups or
forums, the messages are private and can only be received by members. The only
address that shows up on an e-mail is the address of the sender and the address
of the AFFTER support group. This protects the privacy of our members and keeps
addresses from being “harvested” for spam.
When you sign up, you will have three (3) options;
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Receive individual e-mails - (receive a copy of the e-mail as it
is sent)
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Receive the digest version - (several e-mails are saved up and
sent as one)
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No mail - (You have to go to the Support group’s online site to
read the e-mails)
To sign up, click on the purple link to the
left. There you will find
detailed information about the group as well as instructions for signing up for
the group. If you need assistance in signing up for a group simply email
info@affter.org.
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Antioch, IL
First Saturday of each month
884 Main Street (Route 83) in Antioch from 10:00 am to noon.
This group is open to all individuals who have chronic pain conditions,
particularly Fibromyalgia, Chronic Fatigue and Lupus.
There is "No cost" to attend and family members are welcome.
Seating is limited, so reservations are recommended.
For more information or to make a reservation, please call 847-362-7807.
Rantoul Fibromyalgia Support Group,
Rantoul, IL
1st Monday and last Friday each month -
Pauline Poremba - 217-892-5513
CFS/FMS and Immune Dysfunction Syndrome
Support Group, Normal, IL
Last Tuesday each month -
Evonne Wurmnest - 309-452-2477
Fibromyalgia Support Group, Normal, IL
Arthritis Foundation -
3rd Monday each month -
Karen Ferguson: 398/451-0785
Fibromyalgia Support Group and Self-Help
Courses, Workshops, Champaign, IL
Arthritis Foundation -
Mary Dennis - 217-398-7815
New Beginnings Support Group, Bloomington, IL
Arthritis Foundation -
309-451-0785
Fibromyalgia Support Group, Rockford, IL
Norma Cassioppi - 815-398-6237
Fibromyalgia Support Group, Geneva, IL
Delnore Community Hospital
2nd Sunday afternoon each month
Jane Holly: 630-377-5152
Chicago Chronic Fatigue Association
www.ChicagoCFS.org
For support group meeting locations and dates contact
EditorCCFSA @ aol.com -
312-409-5363
A 501(c)(3) organization where you can find out information about Chronic
Fatigue Syndrome and other related illnesses, find out about support groups,
upcoming events and other news.
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Kenosha Fibromyalgia Support Group, Kenosha, WI
3rd Wednesday each month -
Debbie - 262-654-2612
FLAVOR Support Group of Racine, Racine, WI
FMS, Lupus, Arthritis, Vulvodynia, CFS -
2nd Tuesday of each month -
Judy - 262-886-1277
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Ivanrest Fibromyalgia Support Group, Wyoming, MI
1st Thursday each month -
Gord and Judy Ellens - 616-534-5913
Fibromyalgia Support Group, Orangeburg, SC
1st Tuesday each month -
Martha - 803-534-6989
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WHY DONATE TO AFFTER?
All funds raised go directly to our mission, which is to improve fibromyalgia
funding, treatment, education and research. A donation to AFFTER would make you
eligible to receive the Fibromyalgia Focus Newsletter, the official voice of
AFFTER. This professional newsletter is sixteen pages long and includes helpful
and accurate information about FMS, as well as updates on organizational
activities. You will also be eligible to receive discounts on AFFTER events,
educational activities and resources.
You do not have to have fibromyalgia in order to donate to AFFTER. Perhaps
you know someone who has fibromyalgia and want to help them somehow. Why not
make a contribution to AFFTER? You can be sure that 100% of your money would go
towards helping people with this life altering, painful illness. If you decide
to contribute in honor of a friend or family member, we will inform that person
that you have donated to their cause.
Click
here to print out a Donation Form or use the PayPal Button to the left.
* You do not need a
PayPal account to Donate to AFFTER, All donations are 100% tax deductible.
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