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Fibromyalgia is a complex condition but can be managed

Know you are not alone in your search and there are resources available to help you. To date there is no one treatment that fits all. There is research taking place to find answers, and caring physicians and researchers working diligently for all of us. 

There are many treatment modalities available that work to help diminish the pain and other symptoms.  Also many categories of drugs being used for help with pain, sleep and fatigue as well as the myriad of other symptoms experienced.   What works on one may not work on someone else. We all respond differently.   Our complex conditions take a multi-discipline approach and often combining Traditional and Complementary/Alternative treatments with medication can work.  A few suggestions to get you started:

-         Have a discussion with your doctor about medications such as Lyrica now officially approved by the FDA for fibromyalgia, also Xyrem and many others now being used for FMS to help with pain and sleep.

-         Explore a few examples of treatments that have worked for some, such as: Acupuncture, Biofeedback, Chiropractic Care, Cognitive Therapy, Massage, and Guided Relaxation to name a few. Research any therapies you may be interested in. It is important to find certified specialists who understand the complexities of fibromyalgia.

 -         Seek the counsel of a professional for the depression you are feeling, someone certified in Cognitive Therapy can be very helpful.  Also let your physician know of your depression.

-         Warm water exercise is most beneficial as well. It protects the joints, keeps the muscles relaxed while strengthening and increasing physical endurance, aerobic capacity and can help with our emotional feelings of wellbeing.

-         Be sure and tell you health care provider of any over the counter medications, vitamins or herbal supplements you may be taking as well as any other treatments.

-         The degree of pain is different for all of us and must be tailored to our individual needs. 

-         Education is key; you should learn as much as you can about your condition so you know what kinds of things to talk to your doctor about. Take any information you have and discuss it with your doctor. This can be the beginning of developing a partnership with your doctor an, ideally giving you an opportunity to be a part of the decision making process regarding treatment options.

-         Support groups offer unconditional support and good resources.
 


SUPPORT GROUPS

FIBROMYALGIA/CHRONIC FATIGUE/LUPUS SUPPORT GROUP:

This support group meets the first Saturday of each month at 884 Main Street (Route 83) in Antioch, IL from 10:00 a.m. to 12:00 p.m. This group is open to all individuals who have chronic pain conditions, particularly Fibromyalgia, Chronic Fatigue and Lupus. There is no cost to attend and family members are welcome. Seating is limited, so reservations are recommended. For more information or to make a reservation, please call 847-362-7807.
 


ONLINE GROUPS

AFFTER facilitates an on-line support group that involves members from around the world. This is a good method of communicating with others who understand because they suffer with the same symptoms as you do.  It is a place to get doctor referrals, discuss symptoms and treatment options, do some venting, give or receive support, and develop friendships with others if you want to. 

Link: http://health.groups.yahoo.com/group/affter/join  (on-line support group - interactive)

Our group is open to anyone who:

  • Has been diagnosed with Fibromyalgia, with or without other related syndromes

  • Thinks they may have Fibromyalgia

  • Has a loved one with Fibromyalgia

  • Is a support person such as a doctor, nurse, attorney, etc.

Whenever someone sends a message or replies to a message, the message is then sent to all members via e-mail. Unlike public newsgroups or forums, the messages are private and can only be received by members. The only address that shows up on an e-mail is the address of the sender and the address of the AFFTER support group. This protects the privacy of our members and keeps addresses from being “harvested” for spam.

When you sign up, you will have three (3) options;

  1. Receive individual e-mails - (receive a copy of the e-mail as it is sent)

  2. Receive the digest version - (several e-mails are saved up and sent as one)

  3. No mail - (You have to go to the Support group’s online site to read the e-mails)

To sign up, click on the purple link to the left.  There you will find detailed information about the group as well as instructions for signing up for the group.  If you need assistance in signing up for a group simply email info@affter.org.
 


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ILLINOIS FIBROMYALGIA SUPPORT GROUPS

Antioch, IL
First Saturday of each month
884 Main Street (Route 83) in Antioch from 10:00 am to noon.
This group is open to all individuals who have chronic pain conditions, particularly Fibromyalgia, Chronic Fatigue and Lupus.
There is "No cost" to attend and family members are welcome. Seating is limited, so reservations are recommended.
For more information or to make a reservation, please call 847-362-7807.

Rantoul Fibromyalgia Support Group, Rantoul, IL
1st Monday and last Friday each month - Pauline Poremba - 217-892-5513

CFS/FMS and Immune Dysfunction Syndrome Support Group, Normal, IL
Last Tuesday each month - Evonne Wurmnest - 309-452-2477

Fibromyalgia Support Group, Normal, IL
Arthritis Foundation - 3rd Monday each month - Karen Ferguson: 398/451-0785

Fibromyalgia Support Group and Self-Help Courses, Workshops, Champaign, IL
Arthritis Foundation - Mary Dennis - 217-398-7815

New Beginnings Support Group, Bloomington, IL
Arthritis Foundation - 309-451-0785

Fibromyalgia Support Group, Rockford, IL
Norma Cassioppi - 815-398-6237

Fibromyalgia Support Group, Geneva, IL
Delnore Community Hospital
2nd Sunday afternoon each month
Jane Holly: 630-377-5152

CHRONIC FATIGUE

Chicago Chronic Fatigue Association
www.ChicagoCFS.org
For support group meeting locations and dates contact EditorCCFSA @ aol.com - 312-409-5363

A 501(c)(3) organization where you can find out information about Chronic Fatigue Syndrome and other related illnesses, find out about support groups, upcoming events and other news.

 

WISCONSIN FIBROMYALGIA SUPPORT GROUPS

Kenosha Fibromyalgia Support Group, Kenosha, WI
3rd Wednesday each month - Debbie - 262-654-2612

FLAVOR Support Group of Racine, Racine, WI
FMS, Lupus, Arthritis, Vulvodynia, CFS - 2nd Tuesday of each month - Judy - 262-886-1277

 

MISCELLANEOUS FIBROMYALGIA SUPPORT GROUPS:

Ivanrest Fibromyalgia Support Group, Wyoming, MI
1st Thursday each month - Gord and Judy Ellens - 616-534-5913

Fibromyalgia Support Group, Orangeburg, SC
1st Tuesday each month - Martha - 803-534-6989

 

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WHY DONATE TO AFFTER?

All funds raised go directly to our mission, which is to improve fibromyalgia funding, treatment, education and research. A donation to AFFTER would make you eligible to receive the Fibromyalgia Focus Newsletter, the official voice of AFFTER. This professional newsletter is sixteen pages long and includes helpful and accurate information about FMS, as well as updates on organizational activities. You will also be eligible to receive discounts on AFFTER events, educational activities and resources.

You do not have to have fibromyalgia in order to donate to AFFTER. Perhaps you know someone who has fibromyalgia and want to help them somehow. Why not make a contribution to AFFTER? You can be sure that 100% of your money would go towards helping people with this life altering, painful illness. If you decide to contribute in honor of a friend or family member, we will inform that person that you have donated to their cause.

Click here to print out a Donation Form or use the PayPal Button to the left.
* You do not need a PayPal account to Donate to AFFTER, All donations are 100% tax deductible.

 

   

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